Asociația Națională Miastenia Gravis România

http://www.miastenie.ro/

National Institutes of Health, the Office of rare Diseases, USA

http://rarediseases.info.nih.gov/

The Office of Rare Diseases (ORD) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the rare diseases community. The ORD Web site provides information for patients and their families with rare diseases and about NIH- and ORD-sponsored biomedical research and scientific conferences

National Organization for Rare Disorders

http://www.rarediseases.org/

NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.

Health on the Net Foundation (HON)

http://www.hon.ch/HONselect/RareDiseases/

ORPHANET is a database dedicated to information on rare diseases and orphan drugs

About.com ::: Rare diseases

http://rarediseases.about.com/

Information about many types of rare diseases and disorders, including causes, symptoms, diagnosis and treatment, including orphan drugs

Medline plus ::: Rare diseases

http://www.nlm.nih.gov/medlineplus/rarediseases.html

European Organisation for Rare diseases ::: Eurordis

http://www.eurordis.org/secteur.php3?id_rubrique=1